Dr. Anne Bassett: what’s important about genetics

Dr. Peter Rosenbaum reveals developmental pediatric pearls of wisdom as he interacts with 3-year-old Sophia and her mother. Dr. Rosenbaum is a professor of paediatrics at McMaster University and co-founder of CanChild Center for Childhood Disability Research (CanChild: Development in the Rewarding Healthcare Experience). For more pearls, explore the CanChild Center for Childhood Disability Research website and the famous F Words of Childhood Disability. Young Sophia and her mom share wisdom through their earlier Curriculum of Caring video (Sophia: gifts of wisdom for parents and professionals.)

Work together to understand what’s going on with them and advocate for them. Get a good history and look for physical problems. “Amazing people… A joy to treat.”

Transition to adulthood can be daunting for people with developmental disabilities. The Developmental Disability Primary Care Program (DDPCP) developed SHARE Transition Plan Tools to guide for health care providers to communicate with patients and families about their transition from pediatric services. SHARE spells out 5 key areas for planning transition: Supports for Communication & Capability; Healthcare Transition & Transfer; Activities & Engagement; Relationships & Well-being; Exploring Services & Supports. Transition planning involves setting goals with youth and families in these areas over time. “SHARE” is also the essence of the collaborative process. 5 unique families SHARE their experiences with these 5 realms of shared transition planning. Visit the DDPCP website (https://ddprimarycare.surreyplace.ca/) Download the Health Care Transition Tools (SHARE Transition Plan & Checklist, Transfer Tools) https://ddprimarycare.surreyplace.ca/wp-content/uploads/2019/09/2.6-TAY-Transition-Transition-Plan.pdf